Mark and Dan

Ellis GayWe lost our Dad, Ellis Gay on the 14th January this year to a very aggressive and short illness called Motor Neurone. From first symptoms to his eventual passing was only 5 months in total,
To raise funds for the Hospice At Home Team and the MNDA (Motor Neurone Disease Association) family and friends will attempt on June 24th 2017 the National Three Peak Challenge in 24 hours, which involves climbing the three highest peaks in England, Wales and Scotland. Scafell Pike, Snowdon & Ben Nevis.

What Is Motor Neurone Disease and Why are we doing this?

MND is a progressive neurodegenerative disease that attacks the upper and lower motor neurones. Degeneration of the motor neurones leads to weakness and wasting of muscles, causing increasing loss of mobility in the limbs, and difficulties with speech, swallowing and breathing. These effects can be vary enormously from person to person, from the presenting symptoms, and the rate and pattern of the disease progression, to the length of survival time after diagnosis.

At the moment there is no cure for this and diagnoses can be extremely difficult, there is no specific way of testing for MND.

In our case diagnoses was made on the 8th December 2016 which we will remember for the rest of our life. Nothing can prepare you for being told someone you love so much has only weeks to live.

During these weeks the illness progressed quicker than anyone could imagine but the care he was given by The Hospice At Home Team was unbelievable this alongside help and assistance from the MNDA (Motor Neurone Disease Association) gave not only Dad but the whole family the support it needed throughout this difficult time.

Our aim which we know is a big ask is to raise £5000, you may ask why this random figure, well in the UK Motor Neurone Disease affects up to 5000 at any one point

Hopefully we can help a little towards the funding for another sufferer and there family who are in the same position as we was in as well as more research towards finding treatments and causes.

Mark and Dan