Your medical and personal information

The Norfolk Hospice takes seriously the need for confidentiality and safeguarding of personal information and the vitally important aspect of trust in a professional caring relationship. We also recognise the importance of sharing medical information about people in our care in order to prevent harm caused by not sharing information appropriately with other health and social care professionals. The information you give us may be recorded on both computer and paper records - and with your permission, we share that information with the following - according to each person's individual situation, for the purposes of their direct care:

  • General Practitioners(GPs)
  • Community Nursing and Integrated Care Teams
  • Macmillan Nurses
  • Colleagues at the NHS Hospital
  • Norfolk County Council
  • Mental Health Services
  • Hospice Volunteers(information given to volunteers is on a strict 'need to know basis' - to ensure your safety and theirs)

All members of staff employed by these bodies are bound by legislation and by the common law duty of confidentiality which means that information that you provide to us must be held in confidence and not shared with anyone else unless:

  • They are legally obliged to disclose the information to another organisation or person
  • You provide consent to share the information with anyone else
  • Protocols are in place permitting partners to share information about you to support any intervention or service you provide

You should tell us if you would prefer us not to share your information.

Your medical information may also be used to support clinical audit, education or other work aimed to monitor the quality of care provided. However, all personal identifiers are removed to ensure confidentially and anonymity. We also keep the contact details of bereaved family members so that we can send a card when someone has died - and so we can invite these to memorial or other events in the future. Tell us if you would like to opt out of this further support and contact.

We are happy to give you copies of all written communications to GPs or others. Please tell us if you would like this. Your personal data will be held in secure conditions for eight years. Under the Data Protection Act (1998) you have the right to request a copy of your information. Speak to a member of staff if you would like to do this.

The Norfolk Hospice is committed to data protection and we have safeguards in place to ensure your information is properly looked after in line with current legislation, NHS codes of practice and professional codes of conduct.

If you have any concerns regarding the use of your medical or personal information or for any further information please speak to a member of the clinical team.